As many of you know, Lyme disease is not only about killing the borrelia burgdorferi bacteria, there are many different pieces of the puzzle to get to good health. If you don’t address all of these issues, then chances are you are still sick. This is why it is so important to find yourself a LLMD, or an LLND to treat you. Sometimes, if available, I feel an LLND (Lyme-Literate Naturopathic Doctor) can be extremely useful as they see your body as a whole, and will automatically treat your body in several aspects as that is what they do naturally, heh, no pun intended 🙂 , but if you have a really good LLMD they will not only focus on Lyme, they will address several other issues along the way as well.
One of the first steps is obviously to try to kill the Lyme bacteria…well, as much as you can. This can be a difficult step to begin the process. It can be an extremely hard, daunting process to find anyone that is even willing to treat you. A good tool to use is the ILADS website, as they can recommend different LLMD’s, but another place where I have had much luck getting some names to see if there was anyone in NH that I have not already talked to, did IV’s, and not just rocephin, as I was already on it WAY too long that it was completely detrimental to getting well is a website called mdjunction.com.
It is wise to see if you can do a phone consult, as many doctors are willing to do so, and get a feel for them, especially since I know many people have to travel great lengths in order to see their doctors. I have had MANY phone consults. Questioned many doctors. Don’t be afraid to ask questions, folks!
Be your own advocate. Just because someone is considered a LLMD or LLND, doesn’t mean they are great doctors. It means they acknowledge Lyme. I have seen and experienced this. Like I said before, I was on rocephin for far too long. Dr. N, remember her? Yeah, she sucked.
She never gave me a single supplement, so I still saw Dr. S. as he treated me as a whole. A GOOD Lyme-literate doctor would know that you should not be on one antibiotic for a long length of time, 45 days or less, as those little crafty buggers can become immune or change forms to cysts and biofilm to protect themselves. Also, it is good to address more than one form of the bacteria to begin with. Combination therapy. With her, I was never told anything, other than to take probiotics. May help your gut, which is very important, but doesn’t address other immune issues.
Both LLND’s, one was a moron and one is awesome and knowledgable.
Point being, ask about their treatment protocol, what types of treatments are offered, anything that comes to mind. I had a phone conference with one “LLMD” and he told me that every single Lyme patient was exactly the same, treated everyone with the same protocol, and 100% of his patients were eventually cured. If you hear something like this, RUN.
No Lyme patient is EVER the same, a good doctor will treat you based on you. There is no “one size fits all” when it comes to treat this bacteria. Some get well very quickly with simple protocol, some people need a very aggressive approach, some can’t handle a very aggressive approach, some get well on orals alone, some need IV’s… the list goes on.
Once you find that good Doctor you are comfortable with, find what approach works best for you and kill the bastards. 🙂
Support your immune system! I could sing this one off the rooftop. So important! Your body is not going to fight off Lyme or co-infections if your body isn’t working right. This can be done in numerous ways, one being eating good and nutritious foods. Should be self explanatory, and although I know sometimes it can be hard to eat good food, but you need to. You ever see that commercial with the kids playing on the soccer field and the kid is in a french fry costume? I can’t remember what the heck the advertisement was for, as I have bugs eating my brain, but the mom said, “you are what you eat!”. Very true. Abide by that.
You also need to figure out if there are any deficiencies going on with you. Dr. S. is a blood work fiend. Lots and lots of tests. But, you have to figure out these things. Even if you DO eat the good and nutritious foods, sometimes it isn’t enough. A very common deficiency among Lymies is magnesium. The bacteria loves it. Depleting it from your body. Once you figure out your immune deficiencies, address them.
As Dr. S says, “not all supplements are created equal!” Sometimes OTC supplements and vitamins aren’t at high enough dosages. A good probiotic belongs in the fridge. Not what you found on the Rite Aid aisle shelf. Discuss and figure out what is going on your immune system, and see what steps you need to take to improve them!
Address your co-infections. Okay, well this one should be a given, but I have had a phone conference with yet ANOTHER “Lyme Literate Doctor” that told me I didn’t have any co-infections, and I couldn’t have any co-infections….after 2 minutes into the phone conversation. Yeahhhhh…. You HAVE to address the co-infections in order to get well. In fact, sometimes it is the co-infection that is causing the worst symptoms, as some of these co-infections symptoms can be mighty serious. Not that Lyme isn’t…but you know what I mean.
People can tend to start to feel well and then crash again, but it might not be Lyme that is the culprit, it could be a co-infection. Painful soles of your feet? Likely Bartonella. Drenching night sweats? Likely Babesia. The testing for co-infections is even more unreliable than Lyme testing is. A co-infection should be a clinical diagnosis. Once again, top statement, find a good doctor.
Your body will become toxic while enduring treatment. It is inevitable. The Lyme bacteria begin to die off and you are pumping yourself with antibiotics. It is important to deal with the toxicity in your body.
This means a lot of things. One of the biggest is to detox! You have to get all the bad toxins out of your body in order to get well. Epsom salt soaks, burbur drops, lemon water and lymphatic drainage massages are all good tools to help with the detox process.
Know what your allergies are: mold, metal toxicity, environmental toxins, food allergies and more. Some things that might not have even bothered your before might have started to affect you once you began treatment.
Know your environment is probably the biggest one. Your home or workplace might have mold that is completely toxic to you and is hindering the process of your healing. Test your water.
One big food allergy is gluten. You may think eating that piece of cake even though your tummy might hurt and your lymph nodes will swell a bit it is okay, but gluten can stay in your system for two weeks! Better skip the cake. I know better said than done, I have had quite a few slip ups, especially if I am having extreme sugar cravings. Kimmie goes straight for the cosmic brownies. There are plenty of great food items to choose from and soon I will share a good “Lyme diet” 🙂
For more information on toxicity and nutritional deficiencies as well, check out my post on the “Common Abornormalities Found in People WIth Lyme Disease” 🙂
Hope these steps help you all on your way to better health!
Have a wonderful day 🙂 🙂
Sources: Beyond Lyme Disease – Connie Strasheim, ILADS.com, mdjunction.com, healingwell.com, lymedisease.org, leapairizona.com, nytimes.com